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2nd Patient Empowerment World Congress 2026 Europe

““Part of Patient Centricity & Collaboration Series”

“Connecting Patients, Clinicians, Industry and Policymakers to Transform Healthcare Through Partnership, Innovation and Empowerment.”

Hilton London Kensington, London, United Kingdom

Day 2 - Thursday 15th October 2026

  Robert Mitchell-Thain, Chief Executive Officer, PBC Foundation

Frida Forya, Senior Quality Solutions Leader – PDQ, Roche

HEALTH EQUITY, ACCESS & PATIENT ADVOCACY

  • Examining the structures necessary to support and mandate patient involvement.
  • Strategies for implementing and expanding these models across diverse healthcare systems.
  • Exploring the vital role of partnerships between different stakeholders in the healthcare ecosystem.
  • Ensuring that patient engagement initiatives are accessible and representative of all populations.

Moderator:

Panelists:

Lara Bloom, President and CEO, The Ehlers-Danlos Society

Caroline Olshewsky, Chief Executive, Lupus UK

Ron Hillel, Assoc. Director, Representation in Clinical Research, Global Patient Engagement, Novartis

  • Patient information leaflets (PILs) have long been a cornerstone of safe medicine use, yet their impact is increasingly limited in a digital-first world where patients turn to online and social sources for guidance. This presentation will share how the MHRA is working collaboratively with patients, healthcare professionals, charities, and industry to co
    design a user-centred approach to medicine information.
  • Attendees will gain insight into emerging policy thinking in the UK and internationally, and how technological innovation aligned with patient voices, can support safer use of medicines, more informed decision-making and achieve greater accessibility.

Smita Robinson, Head, Product Information Quality Unit, MHRA

  • Vision
  • Underlying principle
  • Aim
  • Test

Tiberius Pereira, Co-founder, Patient Safety Ireland (PFPSI)

  • Assess whether decentralized trial models improve recruitment among geographically diverse and underrepresented populations.
  • Evaluate participant satisfaction, convenience, and retention in remote and hybrid clinical trial settings.
  • Investigate the quality, reliability, and regulatory acceptability of remotely collected clinical data.
  • Identify operational, technological, and ethical challenges associated with decentralized trial implementation.

RESERVED

  • Integrating patient insights into every stage of the medicine lifecycle, from discovery to post-market support
  • Designing clinical trials that reduce patient burden and improve recruitment, diversity, and retention
  • Using patient-reported outcomes and real-world evidence to demonstrate value and improve therapies
  • Building transparent partnerships between pharmaceutical companies, clinicians, and patient organisations

RESERVED

  • This session looks at what it really means to do patient engagement differently in ways that reach communities who are too often left out of health research.
  • We will share practical, creative and culturally grounded approaches to gathering genuine insights, sharing outreach, and building trust with underrepresented communities and why these matters for making clinical trials and health research more inclusive and effective.

Sneha Mojumdar, Projects and Partnerships Manager, Egality Health
Alidor Gaspar, Patient advocate, Artist

  • Integrating patient insights from the initial discovery phase through to post-market engagement.
  • Strengthening partnerships with patient advocacy groups to better align goals.
  • Improving communication channels to ensure greater transparency for all stakeholders.
  • Developing sustainable strategies to provide ongoing support for patients.

Marta Lago, Programme Co-lead, Healthcare Systems Transformation, The Care Lab

PHARMA & LIFE SCIENCE DRIVING PATIENT-CENTRIC INNOVATION

  • Establishing clear channels of information to foster long-term patient relationships.
  • Implementing robust standards for compliant and patient-centric interaction.
  • Developing proactive strategies to counteract inaccurate health information.
  • Clearly articulating the tangible benefits of pharmaceutical innovation and care.

Steve Clark, Founder and Patient Advocate, Strive for Five

  • Patient empowerment often fails because healthcare still measures only a fraction of what drives real-world outcomes
  • Digital health can make the “invisible” visible by capturing behaviour, context, and early signals between visits
  • What needs to change for empowerment to translate into better access and outcomes at scale?

Richard Cassidy, SVP – Rx+ Business Accelerator, Astellas Pharma

  • Patient empowerment often fails because healthcare still measures only a fraction of what drives real-world outcomes
  • Digital health can make the “invisible” visible by capturing behaviour, context, and early signals between visits
  • What needs to change for empowerment to translate into better access and outcomes at scale?

Richard Cassidy, SVP – Rx+ Business Accelerator, Astellas Pharma

  • Opportunities for Servier to build meaningful partnerships with patients through a patient-centric operating model, including Global Patient Advisory Councils
  • How patient insights and lived experiences can inform Servier’s strategic plans

Delphine Nicolas, Head Of Global Patient Affairs – Oncology, Servier

Bullet points to follow

Jose Diaz, Global HEOR – Health Systems Economics & Value of Innovation Lead, Bristol Myers Squibb

  • Understand how to leverage digital tools and clinical data platforms to improve workflows, maximize trial efficiencies, and enhance outcomes.
  • Discover strategies to align public and private efforts to fund sustainable innovation ecosystems and market access.
  • Acquire techniques for developing user-centric portals and wearable integrations for direct health management and true centricity.
  • Master the ability to establish shared accountability frameworks and metrics (PROMs/PREMs) to track systemic progress and demonstrate therapeutic value

Moderator:


Panelists:

Gold Sponsor

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